TY - JOUR
T1 - Stoma support garments
T2 - A survey on patient information needs, product selection and equity of provision
AU - Taylor, Claire
AU - Munro, Julie
AU - Goodman, William
AU - Beeken, Rebecca
AU - Dames, Nicola
AU - Oliphant, Raymond
AU - Watson, Angus
AU - Hubbard, Gill
N1 - Funding Information:
The team received funding from Vanilla Blush, a UK-based commercial supplier of stoma support garments. All data were anonymous and confidential. Ethical approval was granted from the University of the Highlands and Islands Research and Ethics Committee (ref: LETHSHE903).
Funding Information:
Declaration of interest This research was sponsored by Vanilla Blush
Publisher Copyright:
© 2020 All rights reserved.
Copyright:
Copyright 2020 Elsevier B.V., All rights reserved.
PY - 2020/4/2
Y1 - 2020/4/2
N2 - Many people with a stoma wear support garments, often a belt or underwear, to support the abdominal muscles, secure the stoma and conceal the appliance. There is some evidence that they reduce the risk of a parastomal hernia developing or getting worse. To investigate the experiences of UK adults living with a stoma regarding the use of support garments, a cross-sectional online survey was designed and distributed on social media and via a mailing list. The questionnaire was completed by 1528 people, 598 of whom answered a free-text question. These responses underwent thematic analysis. This article discusses the responses related to information provision, product selection and equity of provision, while separate articles discuss those related to the rationale for wearing stoma support garments. A third of respondents had not received any expert information on support garments and had to rely on their own research to make their selection. Of the 1004 who had received information, the main sources were stoma care nurses (73.4%), commercial suppliers (49.7%), peers (20.9%) and support groups (19.2%). Free-text comments indicated that respondents did not always feel they had been adequately counselled about support garments or shown the range available. Many respondents described restrictions being imposed on the number or range of products they could order. This study highlights the important role stoma care nursing specialists can play in assessment and review of support garments to ensure ostomates select the right product for their prescription..
AB - Many people with a stoma wear support garments, often a belt or underwear, to support the abdominal muscles, secure the stoma and conceal the appliance. There is some evidence that they reduce the risk of a parastomal hernia developing or getting worse. To investigate the experiences of UK adults living with a stoma regarding the use of support garments, a cross-sectional online survey was designed and distributed on social media and via a mailing list. The questionnaire was completed by 1528 people, 598 of whom answered a free-text question. These responses underwent thematic analysis. This article discusses the responses related to information provision, product selection and equity of provision, while separate articles discuss those related to the rationale for wearing stoma support garments. A third of respondents had not received any expert information on support garments and had to rely on their own research to make their selection. Of the 1004 who had received information, the main sources were stoma care nurses (73.4%), commercial suppliers (49.7%), peers (20.9%) and support groups (19.2%). Free-text comments indicated that respondents did not always feel they had been adequately counselled about support garments or shown the range available. Many respondents described restrictions being imposed on the number or range of products they could order. This study highlights the important role stoma care nursing specialists can play in assessment and review of support garments to ensure ostomates select the right product for their prescription..
KW - Parastomal hernia
KW - Patient information
KW - Prescriptions
KW - Stoma accessories
KW - Support wear
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U2 - 10.12968/gasn.2020.18.3.18
DO - 10.12968/gasn.2020.18.3.18
M3 - Article
AN - SCOPUS:85083510618
SN - 1479-5248
VL - 18
SP - 18
EP - 26
JO - Gastrointestinal Nursing
JF - Gastrointestinal Nursing
IS - 3
ER -