Perspectives of people living with dementia and their care partners about the impact on social health when participating in a co-designed Dementia café

Anthea Innes, Lorna Chesterton, Lydia Morris, Sarah K. Smith, Sophie Bushell

Research output: Contribution to journalArticlepeer-review

3 Citations (Scopus)

Abstract

Those diagnosed with dementia and those who provide care and support often feel socially isolated with limited opportunities for social engagement, increasing the potential for loneliness and further isolation that is detrimental to social health. This study examined how a co-designed dementia café impacted on the self-reported social health of community dwelling people with dementia and their care partners in the North-West of England. Semi-structured interviews were conducted at two time periods (summer of 2019 and spring of 2020), with five people living with dementia and eight care partners. The key finding was that participating in the cafés led to a sense of belonging and purpose that was beneficial to well-being and social health for all participants. Community-based initiatives that provide opportunities for peer support for the person with the diagnosis and the care partner are essential so that people living with dementia may rebuild their confidence as well as retaining opportunities to socialise.

Original languageEnglish
Pages (from-to)e1375-e1383
JournalHealth and Social Care in the Community
Volume30
Issue number4
DOIs
Publication statusPublished - 18 Aug 2021

Keywords

  • care partners
  • co-designed
  • community dwelling
  • dementia
  • dementia café
  • social health
  • well-being

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