TY - JOUR
T1 - LiveWell – Promoting Healthy Living and Wellbeing for Parkinson Patients through Social Network and ICT Training: Lessons Learnt and Best Practices
AU - Boulos, Maged N. Kamel
AU - Ifeachor, Emmanuel
AU - Escudero, Javier
AU - Zhao, Peng
AU - Carroll, Camille
AU - Costa, Pedro
AU - Doppler, Gerhard
AU - Marín, Laura Carrasco
AU - Spiru, Luiza
AU - Guðmundsdótti, Kristin Helga
AU - Kosem, Marija
PY - 2015/9/21
Y1 - 2015/9/21
N2 - About 1.2 million people in Europe have Parkinson's disease (PD). PD patients often suffer from social exclusion and depression due to progressive lack of control over the disease. Eventually, most require constant care, leading to huge socioeconomic burdens. To partially tackle this issue, 7 partners in 7 countries participated in LiveWell (EU-funded project, 2012-14) to develop an innovative Web-based education, training and social community platform targeting PD patients, carers and clinicians. This paper describes LiveWell from conception to completion, presents lessons learnt over the course of the project, and highlights some identified main areas of best practice. The Project Consortium might not have had the chance to implement everything learnt in the current outputs, but these lessons and guidelines can be later used to improve LiveWell, and can also be generalised to benefit similar e-health services. The combination of appropriate online education and social communities could help patients and carers cope positively with PD, promoting social inclusion and better outcomes.
AB - About 1.2 million people in Europe have Parkinson's disease (PD). PD patients often suffer from social exclusion and depression due to progressive lack of control over the disease. Eventually, most require constant care, leading to huge socioeconomic burdens. To partially tackle this issue, 7 partners in 7 countries participated in LiveWell (EU-funded project, 2012-14) to develop an innovative Web-based education, training and social community platform targeting PD patients, carers and clinicians. This paper describes LiveWell from conception to completion, presents lessons learnt over the course of the project, and highlights some identified main areas of best practice. The Project Consortium might not have had the chance to implement everything learnt in the current outputs, but these lessons and guidelines can be later used to improve LiveWell, and can also be generalised to benefit similar e-health services. The combination of appropriate online education and social communities could help patients and carers cope positively with PD, promoting social inclusion and better outcomes.
U2 - 10.4018/IJHISI.2015070102
DO - 10.4018/IJHISI.2015070102
M3 - Article
SN - 1555-3396
VL - 10
SP - 24
EP - 41
JO - International Journal of Healthcare Information Systems and Informatics (IJHISI)
JF - International Journal of Healthcare Information Systems and Informatics (IJHISI)
IS - 3
ER -