TY - JOUR
T1 - Integrated health and social care in the community
T2 - A critical integrative review of the experiences and well-being needs of service users and their families
AU - Henderson, Louise
AU - Bain, Heather
AU - Allan, Elaine
AU - Kennedy, Catriona
N1 - Funding Information:
This review has been conducted by Louise Henderson (PhD student) and supervisors Professor Catriona Kennedy, Dr Heather Bain and Dr Elaine Allan as part of a funded PhD studentship. The studentship is sponsored by Robert Gordon University and funded by NHS Grampian.
Publisher Copyright:
© 2020 The Authors. Health and Social Care in the Community published by John Wiley & Sons Ltd
PY - 2020/10/15
Y1 - 2020/10/15
N2 - A need for people-centred health and social support systems is acknowledged as a global priority. Most nations face challenges in providing safe, effective, timely, affordable, coordinated care around the needs and preferences of people who access integrated health and social care (IHSC) services. Much of the current research in the field focuses on describing and evaluating specific models for delivering IHSC. Fewer studies focus on person-centred experiences, needs and preferences of people who use these services. However, current international guidance for integrated care sets a precedence of person-centred integrated care that meets the health and well-being needs of people who access IHSC services. This integrative literature review synthesises empirical literature from six databases (CINAHL; MEDLINE; AMED; TRIP; Web of Science and Science Direct; 2007–2019). This review aims to better understand the experiences and health and well-being needs of people who use IHSC services in a community setting. Twenty studies met the inclusion criteria and results were thematically analysed. Three overarching themes were identified, including relationships, promoting health and well-being and difficulty understanding systems. Findings of this review indicate that relationships hold significance in IHSC. People who access IHSC services felt that they were not always involved in planning their care and that there was a lack of clarity in navigating integrated systems; subsequently, this impacted upon their experiences of those services. However, service user and informal carer voices appear to be underrepresented in current literature and studies that included their views were found to be of low quality overall. Collectively, these findings support the need for further research that explores the person-centred experiences and needs of people who access IHSC.
AB - A need for people-centred health and social support systems is acknowledged as a global priority. Most nations face challenges in providing safe, effective, timely, affordable, coordinated care around the needs and preferences of people who access integrated health and social care (IHSC) services. Much of the current research in the field focuses on describing and evaluating specific models for delivering IHSC. Fewer studies focus on person-centred experiences, needs and preferences of people who use these services. However, current international guidance for integrated care sets a precedence of person-centred integrated care that meets the health and well-being needs of people who access IHSC services. This integrative literature review synthesises empirical literature from six databases (CINAHL; MEDLINE; AMED; TRIP; Web of Science and Science Direct; 2007–2019). This review aims to better understand the experiences and health and well-being needs of people who use IHSC services in a community setting. Twenty studies met the inclusion criteria and results were thematically analysed. Three overarching themes were identified, including relationships, promoting health and well-being and difficulty understanding systems. Findings of this review indicate that relationships hold significance in IHSC. People who access IHSC services felt that they were not always involved in planning their care and that there was a lack of clarity in navigating integrated systems; subsequently, this impacted upon their experiences of those services. However, service user and informal carer voices appear to be underrepresented in current literature and studies that included their views were found to be of low quality overall. Collectively, these findings support the need for further research that explores the person-centred experiences and needs of people who access IHSC.
KW - community
KW - experience
KW - integrated health and social care
KW - needs
KW - relationships
KW - service user
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U2 - 10.1111/hsc.13179
DO - 10.1111/hsc.13179
M3 - Review article
C2 - 33058359
AN - SCOPUS:85092524878
SN - 0966-0410
VL - 29
SP - 1145
EP - 1168
JO - Health and Social Care in the Community
JF - Health and Social Care in the Community
IS - 4
ER -