Future outlook of people living alone with early-stage dementia and their non-resident relatives and friends who support them

Janet Heaton, Anthony Martyr, Sharon Nelis, Ivana Markova, Robin Morris, Ilona Roth, Robert Woods, Linda Clare

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Abstract

Little is known about the experiences of people living alone with dementia in the community and their non-resident relatives and friends who support them. In this paper, we explore their respective attitudes and approaches to the future, particularly regarding the future care and living arrangements of those living with dementia. The study is based on a qualitative secondary analysis of interviews with 24 people living alone with early-stage dementia in North Wales, United Kingdom, and one of their relatives or friends who supported them. All but four of the dyads were interviewed twice over 12 months (a total of 88 interviews). In the analysis, it was observed that several people with dementia expressed the desire to continue living at home for ‘as long as possible’. A framework approach was used to investigate this theme in more depth, drawing on concepts from the existing studies of people living with dementia and across disciplines. Similarities and differences in the future outlook and temporal orientation of the participants were identified. The results support previous research suggesting that the future outlook of people living with early-stage dementia can be interpreted in part as a response to their situation and a way of coping with the threats that it is perceived to present, and not just an impaired view of time. Priorities for future research are highlighted in the discussion.
Original languageEnglish
Pages (from-to)1-21
Number of pages21
JournalAgeing & Society
DOIs
Publication statusPublished - 27 Apr 2020

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Keywords

  • advance care planning, Alzheimer's disease, experiences, hopes and fears, informal carers, qualitative secondary analysis, temporal orientation, time

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