Development of a pseudo/ anonymised primary care research database: Proof-of-concept study

Sandra MacRury, J Finlayson, S Hussey-Wilson, S Holden

Research output: Contribution to journalArticle

2 Citations (Scopus)

Abstract

General practice records present a comprehensive source of data that could form a variety of anonymised or pseudonymised research databases to aid identification of potential research participants regardless of location. A proof-of-concept study was undertaken to extract data from general practice systems in 15 practices across the region to form pseudo and anonymised research data sets. Two feasibility studies and a disease surveillance study compared numbers of potential study participants and accuracy of disease prevalence, respectively. There was a marked reduction in screening time and increase in numbers of potential study participants identified with the research repository compared with conventional methods. Accurate disease prevalence was established and enhanced with the addition of selective text mining. This study confirms the potential for development of national anonymised research database from general practice records in addition to improving data collection for local or national audits and epidemiological projects
Original languageEnglish
Pages (from-to)113-119
Number of pages6
JournalHealth Informatics Journal
Volume22
Issue number2
DOIs
Publication statusPublished - 15 Jun 2014

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Keywords

  • data security and confidentiality
  • databases and data mining
  • ehealth
  • electronic health records
  • primary care
  • pseudonymise
  • text mining

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